The 3 dangers of being sad after a chronic illness diagnosis

Sadness after a chronic illness diagnosis, that’s valid, right? 

It’s a good thing… yes?

Well – sort of.

Sadness can be restrictive

Strange as it may seem, having mixed emotions can actually be a saving grace.

If we are sad over our Loved One’s suffering, but simultaneously frustrated at the doctors, angry at God or jealous of others, no one feeling has complete control.

After all, we’re only human, and cannot plumb the depths of ‘anger’ at the exact same time as we are reaching into the extent and intensity of ‘grief’.

With many emotions comes also many options for relief, more opportunities for someone to say ‘me too’.

Yet when we are simply sad, it can become all-consuming. We can easily develop ‘tunnel vision’, and our sadness may push aside every other happiness.

In one sense that’s okay. It’s not wrong to feel grief, and immense grief will be felt immensely.

But it can also be harmful, because we all need some measure of distance. Continue reading “The 3 dangers of being sad after a chronic illness diagnosis”

What I learnt when I cried in church

I hesitate to share this. It’s personal. It’s ‘deep’… and this is in itself is normally an indicator that I shouldn’t post it on the World Wide Web.

We’ve looked at why it’s okay to cry in public and also how to respond. Now this is my story…

My story of public grief (and what it taught me about God and chronic illness)

I believe it’s important.

This experience was one of the times I have seen God teaching me ‘in the moment’. It was a valuable lesson – and so I share it, not for sympathy or scandal, but so you might also see the God I saw that day.

Continue reading “What I learnt when I cried in church”

How to cope with grief in a public place

What do we do when we find ourselves crying in church? – Is this a silly question? I don’t think it is.

I like practical answers.

If something uncomfortable has to happen, I want to know how I can fix it (or, preferably, avoid it).

What do I do when I find myself crying? Is this a question that needs to be answered?

I think it is.

Why?

Because weeping in public is not a common occurrence in Western culture. We generally try to avoid it – and so when we weep in public it is because we are overcome with grief. Tears take us by surprise; we are unprepared.

And personally, I’d rather not be. So let’s think about it now, before we find ourselves in that situation.

What should we do when we find ourselves overcome with emotion in public place?
Continue reading “How to cope with grief in a public place”

Why I think it’s okay to grieve in Public

Grieving in front of people is not something we’re particularly good at in my culture. Weeping often happens behind closed doors, or in the arms of a loved one.

Yet when a diagnosis of chronic illness enters our lives, or the lives of our family members, it’s impossible to avoid public places, and often just as impossible to avoid tears!

As Christians, church is a public sphere where we may find it hard to contain our grief. For this reason I’m going to use it as an example, but most of what is written below can apply to any public space.

Firstly: should we even be trying to contain our grief?

I don’t think so.

4 Reasons we grieve chronic illness in public

1. We grieve chronic illness in public because we care

Continue reading “Why I think it’s okay to grieve in Public”

What to do when chronic illness makes you angry

Perhaps your father has been diagnosed with cancer, or your mother with Alzheimer’s, and you’re angry. Angry at everyone: the doctors, yourself, the people around you, the sick person, and most of all, God.

So what do we do?

Smash a few windows? Yell? Break down into tears? What’s the appropriate response?

Is there one?

How do you cope with anger after a chronic illness diagnosis?

What happens when we’re angry at a situation but don’t want to be?

Anger is harmful

I have no “5 Step Plan” to cope with the anger associated with chronic illness. I’m going to admit that up front. But I think it’s helpful to start by admitting that anger is not the best response.

There are more helpful emotions to feel.

I think we all know that. But is anger always wrong? Surely it’s okay to be indignant at injustice, or annoyed at pain.

There’s no simple answer here, no black and white. But we need to remember that righteous or otherwise, anger can hurt people. Anger can cause us to lash out, it can ruin relationships, it can tear apart community. If not addressed will linger and fester, and it will ultimately destroy us.

We should not cultivate anger.

Continue reading “What to do when chronic illness makes you angry”

After a diagnosis: Why anger?

A chronic illness diagnosis is emotional. We may feel sad, guilty, overwhelmed… and we can feel angry. Sometimes this is short-lived, but mine wasn’t.

Why are we angry?

Coping with anger after a diagnosis is not simple

Chronic illness and suffering is a sensitive topic, so let me use another analogy.

Say I stub my toe. It hurts. It makes me angry.

Why?

Anger over chronic illness is a reaction to frustration

Continue reading “After a diagnosis: Why anger?”

Long distance Watching (Part 2)

It’s difficult to care as much about something when you’re not confronted with it every day.
We are often more distressed about our 3 year old’s tantrum than a war in a 3rd world country. What we see and experience affects us.

Watching from a distance feels less ‘real’

What we experience personally seems more real, not only because we are a firsthand witness but because it actually disrupts our life.

Thus, it is more difficult to Watch when we do not see our Loved One regularly. It is genuinely hard to place as much importance on their struggles.

Not because our love is less, but because it makes up less of our day.

What should we do?

Continue reading “Long distance Watching (Part 2)”

Idealism or Pessimism: which is the right response to suffering?

Have you ever felt over the moon with joy – only to have someone snipe at you for being “too idealistic?”

We’ve all met That Person. The one with a hard life and huge smile. They never seem ‘down’ and they’re always hopeful about the future, even when there seems to be little to hope in!

Perhaps you’re that person. Or maybe you’re more inclined to the opposite view… You understand that life is hard and it probably won’t get any better, and having fun is all very nice, but it’s not reality!

Idealism or pessimism? Which is the right response when confronted with tragedy and illness?

It’s easy to judge a response when it’s the opposite to our own

If you’re bubbly and full of life it can be extremely disheartening when others “drag you down”. It’s not pleasant to have our “bubbles burst” or our happiness frowned at!

Continue reading “Idealism or Pessimism: which is the right response to suffering?”

4 reasons admitting we are sad is not that easy

I find it quite difficult to respond to: ‘How are you?’
With, ‘Sad.’
It doesn’t seem like an appropriate answer.

It seems a bit silly to even have to say this, but when a Loved One is diagnosed with a chronic illness, it can make us feel sad.

It sounds ridiculous. Of course when someone is sick it is going to make us sad. But I genuinely believe it’s not that simple. At least it wasn’t for me.

4 reasons we find it hard to be sad after a diagnosis

1. Sadness is unexpected

To be sad – and only sad – is quite rare.

Life is complex, and so we are often experience several emotions at a time, particularly in the wake of a chronic illness diagnosis.

Our grief is often tainted with anger or bitterness or frustration, or even exhaustion. As a result, when we find ourselves ‘simply’ sad, and ‘only’ grieving, it can feel a bit odd. It is an experience we are not prepared for, and don’t know how to cope with.

This can be uncomfortable and confusing. It was for me. Continue reading “4 reasons admitting we are sad is not that easy”

Why aren’t I allowed to say that chronic illness is not fair?

Perhaps you have been here:
A knock at the door.
You answer.
It’s a friend, a neighbour. She has just popped over for a chat.

She holds a covered dish:

‘Cooked a bit extra and thought you could do with a home cooked meal’.

She asks how we are, how our Loved One is.

She complains for a while about her work, and how tired she is from the high tea she went to on the weekend. She has another date with friends in a few days but unfortunately it coincides with the birthday of a family member:

‘It’s always the way isn’t it? Everything at once, so frustrating.’

She shifts on the door step:

‘Ah well, no rush to return the dish – we’ll be away for a few weeks.

Going on a cruise. Just a small one. I’m a bit worried actually, I’m terrified I’m coming down with a cold. There’s nothing worse than a sniffly nose!

Anyway, got to rush, I have a hair dressers appointment this afternoon. All the best!’

You juggle the still-warm meal and close the door, the hot smell of cheese and silver foil clouding the air.

After the door is firmly shut and the neighbour out of sight, you give the wood a short, hard kick.

It’s not fair!
Continue reading “Why aren’t I allowed to say that chronic illness is not fair?”