Yet when my younger sister was diagnosed with a brain tumour and I spent every other day at the hospital and I cared for her in many physical ways from feeding to advocating for her with the pain team, I still didn’t feel this label belonged to me.
But I also felt that I needed the help a label brings.
Without a label I did not have the words to share my story.
(today I’m posting over at Chronic-Joy.org).
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