For years I never considered that this label belonged to me. It seemed too formal, to restrictive, too…important for what I did to help my chronically ill mum.
Hugs and housework and understanding.
Surely those didn’t deserve such a label?
Yet when my younger sister was diagnosed with a brain tumor and I spent every other day at the hospital and I cared for her in many physical ways from feeding to advocating for her with the pain team, I still didn’t feel this label belonged to me.
But I also felt that I needed the help a label brings. Without a label I did not have the words to share my story.
Read more! (today I’m posting over at Chronic-Joy.org).
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