Why we need to tell our chronically ill friend the truth (even if it hurts)

Have you ever been hurt by someone? I have.
When it happens there are two things I want to do. I want to tell them they were in the wrong… and I want to tell someone else what occurred.

But what happens when it’s my chronically ill family member or friend who has hurt me?

Am I allowed to rebuke them?

And is it right to tell other people?

Q1. Are we allowed to yell at someone who is sick?

Anger brings a delicious freedom.

It allows us to feel that we are “within our rights” (whatever that means!) to say exactly what we think.

It seems to give us license to bring up past issues, to tell someone exactly what we think about them, what they ought to do (or not do), and precisely how much they have inconvenienced us.

My friends, if that is the sort of rebuking we want to do to our chronically ill family member, then the answer is no.

No, we should not rebuke them – because we shouldn’t rebuke anyone like that! It’s not loving.

On the other hand, if by rebuking we mean simply telling them that we are hurt because of them – then the answer is ‘perhaps’.

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I think I hate my chronically ill family member

I hate my chronically ill family member
Have you ever thought the above sentence? Maybe not in those words. Substitute ‘hate’ for one of these:

Dislike

Frustrated at

Disapprove of

Am annoyed at

Would like to strangle

Does the sentence ring true for you now? Has it ever? If so, this post is for you.

We all live in relationship with other people.

It’s different though, when one of the members of the relationship is always sick. Whether it’s our spouse who is constantly hurting, or our sibling who is often in pain, it makes the relationship difficult.

It can mean their ability to engage in social niceties is limited. Often it means we can’t simply leave them whenever we want – there is no ‘space’ or ‘time out’ in our relationship.

Often this is okay. Other times it’s just too much. And there are some days where we can’t stand the sight of our chronically ill loved ones.

We feel like we are about to explode in frustration or annoyance. Our reservoirs of sympathy have dropped to critical level and we just want to grab them and shake them – or yell, wave our arms and leave.

With no plans to return.

But then we feel guilty. We are absolutely awful people. How can we possible get angry at someone who is sick? How can we stand and yell at someone whom society tells us is more vulnerable than ourselves?

After these thoughts, it’s easy for our frustration to double.

It’s not fair.

Why are other people allowed to have fights with their partner but we can’t? This sickness, it gets in the way of everything. There’s no release for our emotions.

You can’t run away from chronic illness – Tweet!

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What I learnt when I cried in church

I hesitate to share this. It’s personal. It’s ‘deep’… and this is in itself is normally an indicator that I shouldn’t post it on the World Wide Web.

We’ve looked at why it’s okay to cry in public and also how to respond. Now this is my story…

My story of public grief (and what it taught me about God and chronic illness)

I believe it’s important.

This experience was one of the times I have seen God teaching me ‘in the moment’. It was a valuable lesson – and so I share it, not for sympathy or scandal, but so you might also see the God I saw that day.

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How to cope with grief in a public place

What do we do when we find ourselves crying in church? – Is this a silly question? I don’t think it is.

I like practical answers.

If something uncomfortable has to happen, I want to know how I can fix it (or, preferably, avoid it).

What do I do when I find myself crying? Is this a question that needs to be answered?

I think it is.

Why?

Because weeping in public is not a common occurrence in Western culture. We generally try to avoid it – and so when we weep in public it is because we are overcome with grief. Tears take us by surprise; we are unprepared.

And personally, I’d rather not be. So let’s think about it now, before we find ourselves in that situation.

What should we do when we find ourselves overcome with emotion in public place?
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What to do when someone you love has a chronic illness and you are too young

When someone we love receives a chronic illness diagnosis, it is easy to feel helpless.

This is magnified when you are “young”.

After all, you can’t offer lifts to doctors’ appointments and you can’t be there all the time, because you have to go to school.

Perhaps your offers to help aren’t taken seriously, or people overlook you in the mad rush to help your sick family member.

What do you do when you are too young to love?…

This post was first published on The Rebelution. Read the rest here!

 

(Image courtesy of original publication).

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Why I think it’s okay to grieve in Public

Grieving in front of people is not something we’re particularly good at in my culture. Weeping often happens behind closed doors, or in the arms of a loved one.

Yet when a diagnosis of chronic illness enters our lives, or the lives of our family members, it’s impossible to avoid public places, and often just as impossible to avoid tears!

As Christians, church is a public sphere where we may find it hard to contain our grief. For this reason I’m going to use it as an example, but most of what is written below can apply to any public space.

Firstly: should we even be trying to contain our grief?

I don’t think so.

4 Reasons we grieve chronic illness in public

1. We grieve chronic illness in public because we care

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3 things a stomach bug taught me about chronic illness

This week I was sick. Not chronically sick. Not even break-your-leg sick or appendicitis-need-operation sick. Merely stomach bug sick.

Uncomfortable, rather depressing, but half a week later and I was over it and back at work.
But something had changed.
While I was unwell I learned three very important truths about chronic illness – and I don’t want to ever forget them.

3 things I learnt about being chronically ill

1. Chronic illness means you are ill.

Don’t get me wrong, I never thought it was a walk in the park.

All my life my mum has battled various autoimmune diseases, and in the past few years I’ve watched my younger sister go through many similar struggles. I know personally how chronic illness can drain families, disrupt lives and sabotage futures.

But there’s nothing like being sick yourself to remember that the act of being sick in itself is awful.

It’s not just about the consequences or the collateral damage.

The minute-by-minute pains and nausea, the feelings of exhaustion, the frustration and the helplessness – it’s a horrible thing to experience.

I never want to forget that chronic illness means you are sick, and being sick is awful.

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What to do when chronic illness makes you angry

Perhaps your father has been diagnosed with cancer, or your mother with Alzheimer’s, and you’re angry. Angry at everyone: the doctors, yourself, the people around you, the sick person, and most of all, God.

So what do we do?

Smash a few windows? Yell? Break down into tears? What’s the appropriate response?

Is there one?

How do you cope with anger after a chronic illness diagnosis?

What happens when we’re angry at a situation but don’t want to be?

Anger is harmful

I have no “5 Step Plan” to cope with the anger associated with chronic illness. I’m going to admit that up front. But I think it’s helpful to start by admitting that anger is not the best response.

There are more helpful emotions to feel.

I think we all know that. But is anger always wrong? Surely it’s okay to be indignant at injustice, or annoyed at pain.

There’s no simple answer here, no black and white. But we need to remember that righteous or otherwise, anger can hurt people. Anger can cause us to lash out, it can ruin relationships, it can tear apart community. If not addressed will linger and fester, and it will ultimately destroy us.

We should not cultivate anger.

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After a diagnosis: Why anger?

A chronic illness diagnosis is emotional. We may feel sad, guilty, overwhelmed… and we can feel angry. Sometimes this is short-lived, but mine wasn’t.

Why are we angry?

Coping with anger after a diagnosis is not simple

Chronic illness and suffering is a sensitive topic, so let me use another analogy.

Say I stub my toe. It hurts. It makes me angry.

Why?

Anger over chronic illness is a reaction to frustration

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The problem with chronic illness and social media

Sharing about chronic illness on social media: It’s difficult.
Particularly when you are only watching someone else’s battle.

That I believe this might come as a surprise, due to the slight fact that this website is full of articles!

Not to mention, I have associated facebook pages, groups, pinterest, google plus and twitter accounts! That’s a lot of social media.

Yet each time I share about the place of chronic illness in my life (as someone who has sick family members, but is not ill myself), I struggle.

It’s a hard topic to think and talk about – let alone share online with everyone and anyone!

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