After a diagnosis: Why anger?

A chronic illness diagnosis is emotional. We may feel sad, guilty, overwhelmed… and we can feel angry. Sometimes this is short-lived, but mine wasn’t.

Why are we angry?

Coping with anger after a diagnosis is not simple

Chronic illness and suffering is a sensitive topic, so let me use another analogy.

Say I stub my toe. It hurts. It makes me angry.

Why?

Anger over chronic illness is a reaction to frustration

Continue reading “After a diagnosis: Why anger?”

Long distance Watching (Part 2)

It’s difficult to care as much about something when you’re not confronted with it every day.
We are often more distressed about our 3 year old’s tantrum than a war in a 3rd world country. What we see and experience affects us.

Watching from a distance feels less ‘real’

What we experience personally seems more real, not only because we are a firsthand witness but because it actually disrupts our life.

Thus, it is more difficult to Watch when we do not see our Loved One regularly. It is genuinely hard to place as much importance on their struggles.

Not because our love is less, but because it makes up less of our day.

What should we do?

Continue reading “Long distance Watching (Part 2)”

Idealism or Pessimism: which is the right response to suffering?

Have you ever felt over the moon with joy – only to have someone snipe at you for being “too idealistic?”

We’ve all met That Person. The one with a hard life and huge smile. They never seem ‘down’ and they’re always hopeful about the future, even when there seems to be little to hope in!

Perhaps you’re that person. Or maybe you’re more inclined to the opposite view… You understand that life is hard and it probably won’t get any better, and having fun is all very nice, but it’s not reality!

Idealism or pessimism? Which is the right response when confronted with tragedy and illness?

It’s easy to judge a response when it’s the opposite to our own

If you’re bubbly and full of life it can be extremely disheartening when others “drag you down”. It’s not pleasant to have our “bubbles burst” or our happiness frowned at!

Continue reading “Idealism or Pessimism: which is the right response to suffering?”

4 reasons admitting we are sad is not that easy

I find it quite difficult to respond to: ‘How are you?’
With, ‘Sad.’
It doesn’t seem like an appropriate answer.

It seems a bit silly to even have to say this, but when a Loved One is diagnosed with a chronic illness, it can make us feel sad.

It sounds ridiculous. Of course when someone is sick it is going to make us sad. But I genuinely believe it’s not that simple. At least it wasn’t for me.

4 reasons we find it hard to be sad after a diagnosis

1. Sadness is unexpected

To be sad – and only sad – is quite rare.

Life is complex, and so we are often experience several emotions at a time, particularly in the wake of a chronic illness diagnosis.

Our grief is often tainted with anger or bitterness or frustration, or even exhaustion. As a result, when we find ourselves ‘simply’ sad, and ‘only’ grieving, it can feel a bit odd. It is an experience we are not prepared for, and don’t know how to cope with.

This can be uncomfortable and confusing. It was for me. Continue reading “4 reasons admitting we are sad is not that easy”

Why aren’t I allowed to say that chronic illness is not fair?

Perhaps you have been here:
A knock at the door.
You answer.
It’s a friend, a neighbour. She has just popped over for a chat.

She holds a covered dish:

‘Cooked a bit extra and thought you could do with a home cooked meal’.

She asks how we are, how our Loved One is.

She complains for a while about her work, and how tired she is from the high tea she went to on the weekend. She has another date with friends in a few days but unfortunately it coincides with the birthday of a family member:

‘It’s always the way isn’t it? Everything at once, so frustrating.’

She shifts on the door step:

‘Ah well, no rush to return the dish – we’ll be away for a few weeks.

Going on a cruise. Just a small one. I’m a bit worried actually, I’m terrified I’m coming down with a cold. There’s nothing worse than a sniffly nose!

Anyway, got to rush, I have a hair dressers appointment this afternoon. All the best!’

You juggle the still-warm meal and close the door, the hot smell of cheese and silver foil clouding the air.

After the door is firmly shut and the neighbour out of sight, you give the wood a short, hard kick.

It’s not fair!
Continue reading “Why aren’t I allowed to say that chronic illness is not fair?”

4 things to do when you run out of sympathy

As we know, chronic illness goes on and on and on.

There is no end, no use by date. This is a problem.

Because we are only human. We find it difficult to stretch out our emotions. A state of perpetual excitement, for example, is extremely difficult to maintain.

So is a state of sympathy.

Yet what happens when the tragedy has not passed (and may not pass) and our sympathetic feelings, our desire to be involved, our sadness in what is, has come to an end?

Do we simply give up?

Do we stop Watching?

First of all let us ask ourselves a probing question:

Why is lack of sympathy a problem?

Why is it a problem that we no longer feel interested in our Loved One’s suffering? Why is it an issue that we don’t wince as they wince any longer?

Is it really that wrong?

I suspect we want to instinctively answer ‘yes’. Yes, there is something wrong when we don’t care about suffering anymore.

That answer is right.

But it’s also wrong.

Everything becomes normal

Continue reading “4 things to do when you run out of sympathy”

Yes, you are a burden to your chronically ill friend…

Have you ever felt like a burden? To those around you? To your friends, your spouse, your community?
I have.

It’s easy to feel doubly burdensome when someone you love is ill or going through a tough time. You don’t want to add to their struggles… and yet somehow you accidentally end up doing so!

Are you a burden?
I am.

Sorry, but you are a burden

A burden is something troublesome. Something hard to get rid of. We can be burdened by duty, worry, conflict or disease.

But more often than not, our real burdens are people.

All relationships are burdensome. All attachments hurt. Friendship is ecstasy and agony.

When we love someone we worry about them. We weep when they weep, we laugh when they love. It is people – family, neighbours, friends, spouses – which hamper our futures and make our decisions doubly difficult.

Continue reading “Yes, you are a burden to your chronically ill friend…”