Prayer + Chronic Illness = ? (Or, why we need to make up our minds about prayer)

When I was little I used to search the chip packet for wish chips.

Chips in general were rare in my household, and those double folded chips were even rarer.

When you ate them you were meant to make a wish. Like wish bones in chickens and blowing out birthday candles.

Every time I crunched a wish chip, I wished for the same thing.

I wished for my mum to be healed.

Now even if you had asked, I would have said I didn’t really believe in wishes… but I felt I had to try.

Just in case.

A lot of us think the same thing about praying for healing.
We have to try.

Just in case.
Continue reading “Prayer + Chronic Illness = ? (Or, why we need to make up our minds about prayer)”

Wait! I feel guilty.

They are sick and I am not.
I can leave the house. They cannot.
I can eat anything I want. They must not.

Guilt is an emotion that it is easy to struggle with after a diagnosis of chronic illness.

When we as Watchers see how the illness is impacting our Loved One’s lives, and envision how it will continue to impact their lives,… the guilt creeps in.

Why do we feel guilty?

  1. We enjoy

When we are out partying or simply enjoying a day at the beach we feel guilty because our Loved One can’t be there with us.

Or perhaps they can – but they are exhausted and have to sit down and miss out on the fun. Maybe they have a health problem they need to worry about, and the experience, enjoyable for us, is isolating for them.

We receive what they do not – and so we feel guilty. Days out become a guilty pleasure. It seems wrong to arrive home to our Loved One or visit them, and recount the fun we had with our healthy body and mind.

Yet guilt is not just about imbalance. For instance, if instead of being painful, lonely and debilitating, chronic illness was like winning the lottery, I don’t think we would feel guilty.

I think we’d feel jealous.

Instead, chronic illness is awful, and so we feel guilty. Their life has been ruined. It is restrictive, it is pain filled. They will climb mountains and descend into valleys which we will never tread.

Likewise, we will enjoy delights that they never will.

Our close relationship with our Loved One means we can’t forget or ignore these imbalances.

After all there are thousands of people in slavery across the world and on the whole we do not spend our hours feeling guilty about our own freedom.

Continue reading “Wait! I feel guilty.”

Watching changes the world

Again, another seeming paradox…

In the last post I proposed that Watching cannot change anything… and now I’m telling you:

Loving someone changes the world

Both are true.

Watching cannot possibly ‘fix’ our Loved One’s suffering.

Nor can it redeem it in their eyes or in the eyes of others. Watching is not an answer to the ‘Problem of Pain’ and should never masquerade as one.

Does that mean Watching is unimportant? Useless? A waste of time? A period of life to be disregarded or belittled?

Not at all.

A spoon is not pointless because it cannot cut my toast. It is merely being used for the wrong purpose.
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Watching changes nothing

It is a blunt title, and yet… it’s true.

‘Being there’ for someone else changes nothing

Nil. Zero. Nought.

That, my friends, is the reality.

As Watchers, we are not needed. We cannot actually do anything. Life goes on and we Watch, and nothing changes.

If there was a list entitled ‘how to change the world’, Watching wouldn’t be on there.

Try as we might, we cannot fix the situation.

We can’t heal our Loved Ones. We can’t be their knight in shining armour and swoop down onto the battle field and sweep them off their feet and carry them to safety.
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What does society say about sickness (PART 2)?

What does society say about healing, prayer, heaven and sacrificial giving?
Have you been duped?

What do we really think about chronic illness? In the depths of our hearts, in the stillness of our bedrooms… are we really as kind as we think?

Here’s my thoughts on what society is perhaps “really” saying (or thinking!) about chronic illness and care-giving.

If some of these observations seem a bit too harsh, let me reiterate my definitions of “society”:

ONE: secular, not-specifically-Bible-based, thought.

TWO:  individual-focused, 21st century, Western culture (because that’s where I live)

THREE: the ‘natural’ whispers of my heart when it is not focused on Jesus.

You see? If this post is harsh, it is harsh towards myself. If this post is judgemental, I am sitting in the dock as well as on the jury.

Let’s examine ourselves together, and not be afraid of what we might uncover.

This is Part 2 of “What does society say about sickness?”

What society says about prayer

Continue reading “What does society say about sickness (PART 2)?”

What does society say about chronic illness (PART 1)?

We know what the Bible says about sickness, but what does society say?
Perhaps it can provide another answer. Even a better answer.

We learnt that the Bible has some guidelines which can help us formulate an ‘answer’ to sickness.

But we can’t stop there.

I think it is important we look at the flip side.

What does society say about Chronic Illness?

A definition of ‘society’

Now, by ‘society’, I mean secular, not-specifically-Bible-based, thought.

I mean the individual-focused, 21st century, Western culture in which I live.

I mean the ‘natural’ whispers of my heart when it is not focused on Jesus.

can you really define ‘society’ like this?

Wait! If at this point you have an objection, I am with you.

If your objection is: ‘We can unearth what the Bible says about sickness by reading it, but how can we discover what society says? It’s too subjective. There’s no manual.’ then I’m with you also.

There is no book for society. It is made up of so many ideologies and sympathies. ‘Society’ is different in different cultures and countries and times.

How on earth can we hope to pin down in one post the response of ‘society in general’ to chronic illness?

To even consider doing so seems pretentious on the largest scale.

Continue reading “What does society say about chronic illness (PART 1)?”

Why aren’t I allowed to say that chronic illness is not fair?

Perhaps you have been here:
A knock at the door.
You answer.
It’s a friend, a neighbour. She has just popped over for a chat.

She holds a covered dish:

‘Cooked a bit extra and thought you could do with a home cooked meal’.

She asks how we are, how our Loved One is.

She complains for a while about her work, and how tired she is from the high tea she went to on the weekend. She has another date with friends in a few days but unfortunately it coincides with the birthday of a family member:

‘It’s always the way isn’t it? Everything at once, so frustrating.’

She shifts on the door step:

‘Ah well, no rush to return the dish – we’ll be away for a few weeks.

Going on a cruise. Just a small one. I’m a bit worried actually, I’m terrified I’m coming down with a cold. There’s nothing worse than a sniffly nose!

Anyway, got to rush, I have a hair dressers appointment this afternoon. All the best!’

You juggle the still-warm meal and close the door, the hot smell of cheese and silver foil clouding the air.

After the door is firmly shut and the neighbour out of sight, you give the wood a short, hard kick.

It’s not fair!
Continue reading “Why aren’t I allowed to say that chronic illness is not fair?”

4 things to do when you run out of sympathy

As we know, chronic illness goes on and on and on.

There is no end, no use by date. This is a problem.

Because we are only human. We find it difficult to stretch out our emotions. A state of perpetual excitement, for example, is extremely difficult to maintain.

So is a state of sympathy.

Yet what happens when the tragedy has not passed (and may not pass) and our sympathetic feelings, our desire to be involved, our sadness in what is, has come to an end?

Do we simply give up?

Do we stop Watching?

First of all let us ask ourselves a probing question:

Why is lack of sympathy a problem?

Why is it a problem that we no longer feel interested in our Loved One’s suffering? Why is it an issue that we don’t wince as they wince any longer?

Is it really that wrong?

I suspect we want to instinctively answer ‘yes’. Yes, there is something wrong when we don’t care about suffering anymore.

That answer is right.

But it’s also wrong.

Everything becomes normal

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How to be prepared to talk about someone else’s illness

Answering questions about your Loved One takes a lot of getting used to.
Watching is unique in that people always have something to talk to you about.

Watching means that you, your Loved One, and their sickness, become common ground.

All of a sudden topics that under normal circumstances would require sensitivity, caution, a relationship or ‘easing into’ become a free for all.

And that’s hard to get used to. It never really becomes normal. People will always expect you to be able to answer deep, painful questions at a drop of a hat. Questions like:

How are you feeling?
Is it hard having a mum/dad/sibling/spouse/friend who is sick all the time?
How is your Loved One?
Does your Loved One get depressed?
Does your Loved One know that you find their illness hard?
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How to break the (bad) news of a diagnosis

Being told your Loved One has a chronic sickness, either physical or mental, is devastating.
Telling someone else can be even harder.

It is excruciating.

And the problem is, we all have more than one person in our lives. And so we are forced to tell the same sad story again and again.

This is not a post with a lot of answers. I’m not sure there are answers. But sometimes, empathy is enough. I pray that is the case here. For you. For me.

Breaking the news of a diagnosis is complex (we need to acknowledge this)

Every situation is different – and the truth is, we are going to have share in many situations. We all have best friends, distant friends, close family, family that live far away, colleagues, communities, church families, sport teams, school classes…. The list goes on.

Chances are, sharing with each of them will look different.

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