Am I really a ‘Caregiver’? (and what does that mean?)

“Caregiver.”

For years I never considered that this label belonged to me. It seemed too formal, to restrictive, too…important for what I did to help my chronically ill mum.
Hugs and housework and understanding.

Surely those didn’t deserve such a label?

Yet when my younger sister was diagnosed with a brain tumour and I spent every other day at the hospital and I cared for her in many physical ways from feeding to advocating for her with the pain team, I still didn’t feel this label belonged to me.

But I also felt that I needed the help a label brings.

Without a label I did not have the words to share my story.

READ MORE….

(today I’m posting over at Chronic-Joy.org).

 

 

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What to do when someone you love has a chronic illness and you are too young

When someone we love receives a chronic illness diagnosis, it is easy to feel helpless.

This is magnified when you are “young”.

After all, you can’t offer lifts to doctors’ appointments and you can’t be there all the time, because you have to go to school.

Perhaps your offers to help aren’t taken seriously, or people overlook you in the mad rush to help your sick family member.

What do you do when you are too young to love?…

This post was first published on The Rebelution. Read the rest here!

 

(Image courtesy of original publication).

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Should we use labels?

‘Don’t restrain me.’
‘Labels are limiting.’
‘We shouldn’t put people in boxes.’

‘Everything is fluid.’
‘Categorizing someone stops them reaching their full potential.’

We don’t like labels.

Talk to anyone who is in tune with the 21st century about political correctness and common courtesy and phrases like the above will arise.

Yet it has been blatantly obvious from the very beginning that I have fixed a very firm label on myself and others on this blog.

Here are some of them:

Watchers – those in a close relationship with chronically suffering people

Wider Watchers – those who are not in a close relationship with chronic sufferers

Loved Ones – the chronic sufferers themselves

Labels restrain us

Why have I done this?

To be perfectly simple, I wouldn’t be able to write without them. I need to have these definitions in order to muse and blog and think about our specific situation.

First things first, let’s clear the waters and accept the inevitable truth:

Labels (inadvertently or otherwise) do place limits.

Continue reading “Should we use labels?”