Help! My sick friend is not very sick…

Our Loved One is too healthy.
On the surface this doesn’t really seem like an issue, does it? More like an answer to prayer!
And yet, I’d like to propose it can be a problem too.

As we Watchers know, chronic illness is unremitting, that’s the nature of it. But the reality is, chronic illness, like everything has it’s ups and downs. Some days are better than others, some weeks are worse. Sometimes we can joke and other times all we can do is cry.

This ebb and flow is good. It helps us survive. It brings us hope, it gives us relief. But it can also be a hard reality to communicate.

‘How is your Loved One?’ Someone asks.
‘Not well,’ you say.
‘Oh, but I saw them at the grocery shop the other day, they looked so good!’

This, my friends, is why it can be just as hard when our loved one is well as when they are not.
Continue reading “Help! My sick friend is not very sick…”

Talking about suffering: When we miss our chance to have the conversation

I know I should talk about it,
I want to talk about it,
I planned to talk about it,
I prepared to talk about it…
But I missed my chance.
Am I a failure?

When we miss our chance to talk about illness

Why is there suffering? My friend asks. Does God care?

I open my mouth – but don’t reply.

Perhaps I was afraid. Perhaps I couldn’t find the words in time. Perhaps someone interrupts, or I misjudge the situation and think it would be best not to respond.

Has this ever been you?
If so, you know about the disappointment and guilt, when you later realise that you’ve missed your chance to speak truth with love.

Continue reading “Talking about suffering: When we miss our chance to have the conversation”

Talking about suffering: Why answering ‘That Question’ is so difficult

Are you a chatterbox? Bring up ‘Sherlock Holmes’, the latest book you’ve read, or something God’s been teaching you… and chances are, I won’t be closing my mouth for a while.

Although I’ve written before about thinking before talking, and even (on occasion!) not speaking at all, the truth is…

I rather like talking.

Yet there are other topics which are less guaranteed to set off an avalanche of words. I suspect it’s the same for you.

I also suspect that one of these might be: ‘why does God allow suffering?’
It’s an important question – so why do we find it so difficult to talk about?
Continue reading “Talking about suffering: Why answering ‘That Question’ is so difficult”

Talking about suffering: Why pure motives don’t always make things right

Why am I sick?
Will I ever get better?
What am I supposed to be doing with my life?
It can take courage to ask these questions. But sometimes, it can take even more courage to answer them.

Today’s post is the first in a series of articles called ‘Talking about Suffering’…

Talking about suffering is hard! (how do you know what to say?)

Figuring out the truths about illness, suffering and the big problems of life is difficult.

It’s a different sort of hard when you are not sick yourself. How often do you feel helpless in the face of such questions? How often do you feel ill-equipped to answer your sick friend’s frustrations?

Even if you ‘know’ the right response (whether that’s an answer, rebuke or piece of advice) you might not know ‘how’ to say it.

Is this you? It’s often me!
Continue reading “Talking about suffering: Why pure motives don’t always make things right”

Planning your own future when you have a chronically ill family member

Sooner or later all of us want to look into the future. The time comes when we need to sit down with pen and paper and plan out our next few years. The problem with doing this as a Watcher is that chronic illness extends into the future too! It’s a big part of our life and we can’t ignore it or naively pretend that it will simply ‘go away’.

How then do we plan our future, keeping in mind our Loved One’s chronic illness?

How to plan your future while thinking of your sick family member

1. We admit it is hard

I think we’d all admit that planning our future is hard anyway. Whether you have too many possibilities or not enough, it’s difficult to figure out what something we have never experienced will look like. Most of us have dreams we’d like to see become reality, or at the very least we dream that one day we will have dreams.

Considering your future in the presence of chronic illness is even harder. The reason for this is that chronic illness is unpredictable. We can’t say how long our Loved One will need us, or how soon they will take a turn for the worse or for the better. We want to be realistic, but we also want to be hopeful.

Of course life is unpredictable for all of us. I could die tomorrow. And yet loving someone with chronic illness means that my future plans will impact them. Whatever I decide there will be some ramifications in their life – and so the burden to ‘choose right’ becomes even heavier.

Continue reading “Planning your own future when you have a chronically ill family member”

Help! I’m jealous of their chronic illness!

Imagine this. Or perhaps you don’t have to…

Your Loved One has lived with their chronic illness for ten years. There’s been highs and lows, but you’re just beginning to understand what life looks like for them and also for you.

Then a close friend receives a diagnosis. They’re sick. Chronically sick… perhaps with the same illness as your loved One, perhaps a slightly different one.

Everyone is dismayed and shocked. They surround the newly-diagnosed one with gifts of love and support. Maybe they look at you, and assume you too will visit and offer your help. After all, you and your Loved One are ‘old hands’.

Perhaps someone nudges you and quips that maybe the past suffering of your Loved One was preparation for loving this person – that all that agony was raising you up for “such a time as this.”

You know you should help. You know you should love. But instead you feel… jealous.
Continue reading “Help! I’m jealous of their chronic illness!”

How to write about Chronic Illness (Watchers, we are not Biographers)

Are you ever tempted to sit down and try and order the pieces of your life?

As you love and care for your sick Loved Ones, do you ever wish you could straighten your hardships out into a coherent narrative, one with a tidy moral and neat conclusion?

Do you feel that if only you had a polished version of your life, it would be a enough to redeem your suffering, because then it would have a purpose?

In short, do you ever neglect your role as a Watcher in order to become ‘Biographer’?

This is what it looks like:

You are often on the look-out for a purpose or a theme behind your Loved One’s suffering, or in day to day occurrences

You have a yearning desire to put each new experience into words so that others can learn

You are tempted to dismiss parts of life which don’t lend themselves to ‘story’

You are drawn to those areas of life which seems just a little bit more dramatic, heroic or exciting

You feel that your life and experiences are wasted if nobody reads about it and learns

I’m going to switch to ‘we’ now, because this is something I am guilty of at times…

Continue reading “How to write about Chronic Illness (Watchers, we are not Biographers)”

Chronic Illness won’t let me celebrate the New Year 2018

As the old year ends and the New Year begins, society gears up to welcome in a new period of life. Parties and fireworks are often external signs of our joy and anticipation of a fresh start.

Many of us begin to make New Years resolutions… but the problem is these simply may not be applicable for you or your loved one suffering from a chronic illness.

With chronic illness, the most common resolutions may seem:

Unachievable (because you have limited energy):

Learn a new skill or language
Organise your life

Ridiculous (If only you had these problems):

Get a better work/life balance
Only party 1x per week

Heart-breaking (if only you could!):

Be the healthiest you possible
Achieve your dreams

Continue reading “Chronic Illness won’t let me celebrate the New Year 2018”

Christmas & Chronic Illness… friends or enemies?

Chronic illness or Christmas? Which would you prefer?
I know which one I’d choose. But too often we don’t have a choice – and this is very evident during the holiday season.

Over Christmas we often spend more time with family, and for many of us, that means spending more time with Chronic Illness.

Chronic Illness doesn’t go on holidays over Christmas…

While the shops and the media try to convince us that by November 1 we have entered into a ‘new world’ of perfectly laid tables, wrapped gifts and dizzying heights of tinsel – most of us know that’s not quite true.

Nothing’s really changed.

Certainly not our loved one’s health struggles.

The rest of the country may be feeling care-free and relaxed – but often our Loved One’s have more cares than ever before. Continue reading “Christmas & Chronic Illness… friends or enemies?”

Prayer, chronic illness & healing (Part 1)

Prayer. Healing. Chronic Illness.
These are tricky topics, and ones I’ve struggled with quite a bit. In these two posts you will find my thoughts… and why prayer has often seemed like a simple ‘wish’ when really it’s more like a magic wand.

Prayer, chronic illness & healing

{POST 1}

Prayer + Chronic illness = ? (Or, why we need to make up our minds about prayer)

When I was little I used to search the chip packet for wish chips.

Chips in general were rare, and those double folded chips were even rarer. When you ate them you were meant to make a wish. Like wish bones in chickens and blowing out birthday candles.

Every time I crunched a wish chip, I wished for the same thing… read more

we need to make up our minds about prayer www.calledtowatch.com #caregiver #struggle #chronicillness #writer #hope #chronic #faith #watching #prayer

{POST 2}

Why we should pray for healing in chronic illness (and 3 reasons it is so hard)

If a wizard doesn’t have a wand, we begin to doubt whether he truly is a wizard. If he has one, and doesn’t use it… well that’s just silly! … 
Often my prayers for my Mum’s healing seem repetitive.

They exhaust me.

I don’t feel like dragging sickness into my prayer life… read more.

why we have to pray for healing www.calledtowatch.com #caregiver #struggle #chronicillness #writer #hope #chronic #faith #watching #prayer

{HAPPY CHRISTMAS}

Christmas is coming up, and I want to thank you for following my blog. When you sign up you’ll receive 3 downloadable and printable cards suitable for someone with a chronic illness – and anyone in need of some love!

PS: Enjoyed the post above? Get the next one delivered straight to you! Sign up for email notifications  

I’m also on Facebook, Pinterest & Twitter! Meet me there for more interesting reads, resources and community.