Wait! I feel guilty.

They are sick and I am not.
I can leave the house. They cannot.
I can eat anything I want. They must not.

Guilt is an emotion that it is easy to struggle with after a diagnosis of chronic illness.

When we as Watchers see how the illness is impacting our Loved One’s lives, and envision how it will continue to impact their lives,… the guilt creeps in.

Why do we feel guilty?

  1. We enjoy

When we are out partying or simply enjoying a day at the beach we feel guilty because our Loved One can’t be there with us.

Or perhaps they can – but they are exhausted and have to sit down and miss out on the fun. Maybe they have a health problem they need to worry about, and the experience, enjoyable for us, is isolating for them.

We receive what they do not – and so we feel guilty. Days out become a guilty pleasure. It seems wrong to arrive home to our Loved One or visit them, and recount the fun we had with our healthy body and mind.

Yet guilt is not just about imbalance. For instance, if instead of being painful, lonely and debilitating, chronic illness was like winning the lottery, I don’t think we would feel guilty.

I think we’d feel jealous.

Instead, chronic illness is awful, and so we feel guilty. Their life has been ruined. It is restrictive, it is pain filled. They will climb mountains and descend into valleys which we will never tread.

Likewise, we will enjoy delights that they never will.

Our close relationship with our Loved One means we can’t forget or ignore these imbalances.

After all there are thousands of people in slavery across the world and on the whole we do not spend our hours feeling guilty about our own freedom.

Continue reading “Wait! I feel guilty.”

How to be prepared to talk about someone else’s illness

Answering questions about your Loved One takes a lot of getting used to.
Watching is unique in that people always have something to talk to you about.

Watching means that you, your Loved One, and their sickness, become common ground.

All of a sudden topics that under normal circumstances would require sensitivity, caution, a relationship or ‘easing into’ become a free for all.

And that’s hard to get used to. It never really becomes normal. People will always expect you to be able to answer deep, painful questions at a drop of a hat. Questions like:

How are you feeling?
Is it hard having a mum/dad/sibling/spouse/friend who is sick all the time?
How is your Loved One?
Does your Loved One get depressed?
Does your Loved One know that you find their illness hard?
Continue reading “How to be prepared to talk about someone else’s illness”

How to break the (bad) news of a diagnosis

Being told your Loved One has a chronic sickness, either physical or mental, is devastating.
Telling someone else can be even harder.

It is excruciating.

And the problem is, we all have more than one person in our lives. And so we are forced to tell the same sad story again and again.

This is not a post with a lot of answers. I’m not sure there are answers. But sometimes, empathy is enough. I pray that is the case here. For you. For me.

Breaking the news of a diagnosis is complex (we need to acknowledge this)

Every situation is different – and the truth is, we are going to have share in many situations. We all have best friends, distant friends, close family, family that live far away, colleagues, communities, church families, sport teams, school classes…. The list goes on.

Chances are, sharing with each of them will look different.

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The one rule to survive a chronic illness diagnosis

How do you respond when a family member or friend is diagnosed with a chronic illness?
How can you possibly support them in their grief?

There are many practical, emotional and spiritual ways you can (and should!) love and care for them – but there’s one thing that I think is most important. It’s a mindset, not a method…

The one rule of a chronic illness diagnosis:

Do not judge.

1. Everyone’s diagnosis is different

A diagnosis might be quick – or drawn out

For some people diagnosis comes quickly, a lightning spring shower swooping out of nowhere, tearing the sky apart. One moment they are healthy and happy – and the next they’re crying in pain and fear.

For others it’s more gradual, like following a paper trail, picking up pieces of the puzzle one at a time until everything makes sense, and the sneaking suspicion is confirmed.

It’s important to remember that however a chronic illness diagnosis begins, it still must be lived through, and this can take a very long time.

Continue reading “The one rule to survive a chronic illness diagnosis”